The need for a cancer open-data platform in Peru

Patricia Socualaya-Sotomayor Aramis Rafael-Carranza Yasmina Solar-Benites About the authors

To the editor. Cancer is a health priority, thus, having tools to assess its impact on society in clinical, social and economic terms is highly important. These tools should be created within the framework of the National Cancer Law 11. República del Perú. Ley N°31336 - Ley Nacional de Cáncer [Internet]. Diario El Peruano. 2021 [citado el 1 de junio de 2023]. Disponible en: https://busquedas.elperuano.pe/download/url/ley-nacional-del-cancer-ley-n-31336-1980284-2.
https://busquedas.elperuano.pe/download/...
and the Digital Government Law, the latter approved with Legislative Decree 1412 that resulted in the creation of a National Open Data Platform, with the aim of facilitating free access to relevant information and its processing, storage, communication and interpretation 22. República del Perú. Decreto Legislativo N°1412 - Decreto Legislativo que Aprueba la Ley de Gobierno Digital [Internet]. Diario El Peruano. 2018 [citado el 1 de junio de 2023]. Disponible en: https://cdn.www.gob.pe/uploads/document/file/353216/decreto-legislativo-que-aprueba-la-ley-de-gobierno-digital-decreto-legislativo-n-1412-1691026-1.pdf.
https://cdn.www.gob.pe/uploads/document/...
. There are several information categories in the aforementioned platform. The health category should include a section containing, in a specific and unified manner, information related to cancer, in order to provide an overview of the population with cancer and the public health situation in Peru, thus facilitating the access to evidence for health decision-making.

Along these lines, we searched the web pages of public health and autonomous entities (such as health professional associations), using the National Comprehensive Cancer Care Plan 2020-2024 33. Ministerio de Salud. Dirección General de Intervenciones Estratégicas en Salud Pública. Dirección Ejecutiva de Prevención y Control de Cáncer. Plan Nacional de cuidados integrales del cáncer (2020 - 2024). Lima: Ministerio de Salud; 2021. [citado el 1 de junio de 2023]. Disponible en: https://www.gob.pe/institucion/minsa/informes-publicaciones/3148581-plan-nacional-de-cuidados-integrales-del-cancer-2020-2024.
https://www.gob.pe/institucion/minsa/inf...
as reference. The information was categorized into five dimensions: epidemiology, information on pharmaceutical products, coverage, specialized service and specialized care. We present a list of 21 cancer-related sources (Table 1), which were examined in order to verify the availability or non-availability of the data.

Table 1
Sources of information on cancer in Peru.

It should be noted that, although efforts have been made to record data on cancer, this information has been published by different sources. We found that 48% (n=10) of the sources were specific for cancer, 24% (n=5) had outdated information and 14% (n=3) were not specific for cancer. In addition, three sources didn’t have information available (two were not linked to the information and one did not publish cancer-related information).

Cancer-related information has been centralized by other countries in different ways, such as the Global Cancer Observatory-GCO (GloboCAN) 44. International Agency for Research on Cancer. Global Cancer Observatory [Internet]. Global Cancer Observatory. 2016 [citado el 1 de junio de 2023]. Disponible en: https://gco.iarc.fr/.
https://gco.iarc.fr/...
, the National Cancer Observatory of the Government of Colombia 55. República de Colombia, Ministerio de Salud y Protección Social. Observatorio Nacional de Cáncer [Internet]. Sistema Integrado de la Información de la Protección Social. 2015 [citado el 1 de junio de 2023]. Disponible en: https://www.sispro.gov.co/observatorios/oncancer/Paginas/Observatorio-Nacional-de-Cancer.aspx.
https://www.sispro.gov.co/observatorios/...
and an Oncology Observatory in Brazil 66. Movimiento Todos juntos contra el cáncer. Observatório de Oncologia. [Internet]. Brasil. [citado el 1 de junio de 2023]. Disponible en: https://observatoriodeoncologia.com.br/#sobre.
https://observatoriodeoncologia.com.br/#...
. These observatories conduct research, create monitoring indicators, identify differences between regions, and recognize gaps in information, among other activities. In Peru, the creation of an observatory has been considered in the Regulations of the National Cancer Law 77. República del Perú, Ministerio de Salud. Reglamento de la Ley N°31336, Ley Nacional de Cáncer [Internet]. Diario El Peruano. 2022 [citado el 1 de junio del 2023]. Disponible en: https://busquedas.elperuano.pe/normaslegales/decreto-supremo-que-aprueba-el-reglamento-de-la-ley-n-31336-decreto-supremo-n-004-2022-sa-2053393-3/.
https://busquedas.elperuano.pe/normasleg...
and in the Regulations of the Medical Emergency Law for the Timely Detection and Comprehensive Care of Child and Adolescent Cancer 88. República del Perú, Ministerio de Salud. Reglamento de la Ley N° 31041, Ley de Urgencia médica para la Detección Oportuna y Atención Integral del Cáncer del Niño y Adolescente [Internet]. Diario El Peruano. 2021 [citado el 1 de junio del 2023]. Disponible en: https://busquedas.elperuano.pe/normaslegales/decreto-supremo-que-aprueba-el-reglamento-de-la-ley-n31041-decreto-supremo-n-024-2021-sa-1976374-5/.
https://busquedas.elperuano.pe/normasleg...
. This observatory could monitor the progress of outcome indicators and processes related to reducing cancer morbimortality in children and adolescents. However, the observatory is still being implemented, despite the fact that Peru is the first country in the region to be considered for the global initiative against childhood cancer 99. Organización Panamericana de la Salud. Iniciativa Mundial contra el Cáncer Infantil en Perú: Comité de Registro [Internet]. Organización Mundial de la Salud. 2020 [citado el 1 de junio del 2023]. Disponible en: https://www.paho.org/es/iniciativa-mundial-contra-cancer-infantil-peru/iniciativa-mundial-contra-cancer-infantil-peru-12.
https://www.paho.org/es/iniciativa-mundi...
, and having announced the creation of a National Observatory of Childhood Cancer 1010. República del Perú, Ministerio de Salud. Minsa presentó la plataforma del Observatorio Nacional de Cáncer Infantil [Internet]. Gob.pe. 2022 [citado el 1 de junio del 2023]. Disponible en: https://www.gob.pe/institucion/minsa/noticias/662052-minsa-presento-la-plataforma-del-observatorio-nacional-de-cancer-infantil.
https://www.gob.pe/institucion/minsa/not...
. In view of the above, we consider that the sources of information in Peru could be used to create an open data platform on cancer, which would facilitate free access to information. The National Center for Epidemiology, Prevention and Disease Control (CDC) Peru, along with the Directorate for Cancer Prevention and Control could manage the platform.

In conclusion, creating a Cancer Open-Data Platform is possible and advisable. It could be created by unifying different sources of information, inter-institutional collaboration, as well as the economic sustainability and optimization of the sources of information. This platform could facilitate monitoring the epidemiological, economic, and health care aspects as well as other factors related to the cancer situation in Peru. This initiative could generate organized, focused and representative information on cancer in Peru, which could contribute to comprehensive, free and dignified care for the population.

References

  • Funding.

    Self-funded

  • Cite as:

    Socualaya-Sotomayor P, Rafael-Carranza A, Solar-Benites Y. The need for a cancer open-data platform in Peru. Rev Peru Med Exp Salud Publica. 2023;40(2):247-9. doi: 10.17843/rpmesp.2023.402.12778.

Publication Dates

  • Publication in this collection
    01 Sept 2023
  • Date of issue
    Apr-Jun 2023

History

  • Received
    11 Apr 2023
  • Accepted
    07 June 2023
  • Published
    19 June 2023
Instituto Nacional de Salud Lima - Lima - Peru
E-mail: revmedex@ins.gob.pe