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Salud Colectiva

On-line version ISSN 1851-8265

Abstract

BALLESTER, Rosa; BUENO, Eduardo  and  SANZ-VALERO, Javier. Information, self-help and identity creation: information and communication technologies (ICTs) and associations for the physically disabled. The example of poliomyelitis. Salud Colectiva [online]. 2011, vol.7, suppl.1, pp. S39-S47. ISSN 1851-8265.  http://dx.doi.org/10.1590/S1851-82652011000400005.

The aim of this paper is to study the quality of the websites of associations for people with polio and post-polio syndrome as an example of an important method for exchanging information and promoting the social visibility of physically disabled people. A descriptive cross-sectional study of 375 sites that met inclusion criteria, found using of the Google search engine, was carried out. The quality was studied through 22 variables, 8 of which make up the "Credibility Indicator". None of the websites met all the quality criteria nor all 8 items in the Credibility Index. A positive correlation between the variables of quality and credibility criteria (Pearson r = 0.81, p<0.001) was observed, therefore the Credibility Index is suggested as a useful tool for determining the quality of the websites. However, this tool must be supplemented with other qualitative approaches that explore both the contexts of lay-expert relationships and the function these sites serve.

Keywords : Internet; Quality Indicators; Self-Help Groups; Poliomyelitis; Postpoliomyelitis Syndrome.

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